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Inspection Summary

Overall summary & rating


Updated 18 March 2015

The Jessie May Trust is a registered charity which offers respite and support to parents and nursing and personal care to children with life limiting illnesses in their own homes. They provide respite care visits for children and young people aged 0 to 19 years of age. Qualified nurses specialising in children’s health care or nursery nurses provide the care and support due to the complexities of the children’s health care needs.

We last inspected the service in November 2013 and no concerns were found.

There was a registered manager in post. A registered manager is a person who has registered with the Care Quality Commission to manage the service. Like registered providers, they are ‘registered persons’. Registered persons have legal responsibility for meeting the requirements in the Health and Social Care Act 2008 and associated Regulations about how the service is run.

Parents told us they were very happy with the care and trusted the nurses to support their child safely. Comments included “it is an amazing service we receive, all the nurses are exceptional and we trust them with our child” and “I cannot fault the service, the staff are friendly and my child enjoys the visits from Jessie May Trust” and “they spend time with my child playing and interacting which is positive as usually the focus is health appointments, it is a fantastic service”.

At the time of our inspection there were 83 children registered with The Jessie May Trust. Support varied depending on the assessment of the child and the requirements of the family. Each child had been assessed and a care plan drawn up involving the child, the parents and other professionals. Parents had been involved in a self-assessment of their needs which provided a score on the frequency of visits and support. Parents confirmed this was kept under review as the needs of their child changed. Care plans included both short and long term goals and wishes on the event of an admission to hospital and end of life care. Parents described to us how this was done sensitively taking into consideration the needs of the child and their wishes.

Clear records were kept of the visits and support delivered to each child. Parents and the nurses shared important information about how to keep the child safe and what was required on each visit. This included any medicines that may be required. The staff had received training in the safe administration of medicines. This included training on oxygen therapy.

Staff understood the needs of the children and young people they supported. They had received appropriate training to enable them to support the children in their care. Staff were aware of the importance of safeguarding children and their role in sharing information with other professionals. Suitable arrangements were in place to ensure only suitable staff were employed to work for The Jessie May Trust. The nurses were employed through the United Bristol Hospital Trust which provided additional support to the nurses in respect of clinical training and support.

There were systems to regularly review and monitor the quality of care. Feedback was gained from children, young people and their families at regular intervals to drive improvements. Parents were invited to attend regular meetings about the running of the service with some being a parent representative on the board.

Staff from the Jessie May Trust work with other professionals and participate in local networking groups to ensure they were working in partnership and following current good practice guidelines.

Inspection areas



Updated 18 March 2015

The service was safe. Staff had a good awareness of how to keep children and young people safe. This was done in partnership with the parents and the child. This was continually kept under review.

Staff understood their responsibilities in reporting any allegations of abuse to other partnership agencies and putting safeguards in place to protect the child.

Safe systems were in place to ensure children were supported with their prescribed medicines in their own homes.

Systems were in place to ensure there were sufficient staff. Staff recruitment procedures were followed.



Updated 18 March 2015

The service was effective. Children, young people and their families were involved in their care. Care plans clearly described the support needs of the child. Staff were knowledgeable about the children they supported. Where the needs had changed adjustments were made to the care and support.

Staff had a good awareness of their responsibilities around ensuring consent was obtained and the legislation that guided them. This included the involvement of other professionals, where decisions were made in the best interest of the child.

Staff had received training relevant to their role and the support needs of the children and young people they supported.



Updated 18 March 2015

The service was caring. We received positive feedback from parents on how the nurses really care about their child. Parents told us they could trust the nurses that supported them with the care of their child. They had got to know the nurses as they visited regularly and their child looked forward to the visits.

The staff were caring and the support given was based on the wishes of the child and the parent. Staff were professional whilst building positive relationships with the family and the child.

Parents and their children were involved in planning their care which included what they would like at the end stages of life. Parents told us this was done sensitively and at a pace that was appropriate to them. Support was offered to bereaved parents and contact maintained if this was what the family wanted.



Updated 18 March 2015

The service was responsive. Each child had been assessed and a care plan put in place on how this should be delivered. Care agreements were in place with clear information on what the child and the family could expect. This was kept under review as the needs of the child changed.

Continual monitoring of the children identified if additional visits were required for example when a child or parent was ill or a hospital admission. Parents confirmed the service was responsive to their child’s changing needs.

Visits were planned including activities that were age appropriate and based on the interests of the children.

Parents felt listened to and complaints were dealt with promptly. This included offering an apology and information about what actions were taken to alleviate the concern.



Updated 18 March 2015

The service was well led. Staff spoke positively about the management structure of the service and the support that was in place for them. They described a team that was cohesive, working to the aims and objectives of the service in providing care and support to children with life limited conditions.

There were good links with other health and social care professionals in respect of supporting the children. Staff ensured they were following current good practice guidelines.

Arrangements were in place for checking the service to ensure standards were maintained. Feedback was received from parents and children on how the service could improve. Regular meetings were held which involved staff, parents and the board and showed continual commitment to driving improvement.