The Jessie May Trust

Updated 18 March 2015

We carried out this inspection under Section 60 of the Health and Social Care Act 2008 as part of our regulatory functions. This inspection was planned to check whether the provider is meeting the legal requirements and regulations associated with the Health and Social Care Act 2008, to look at the overall quality of the service, and to provide a rating for the service under the Care Act 2014.

This inspection took place over three days. We visited the office of The Jessie May Trust on the 20 January 2015 and met with parents and children on the 21 and 22 January 2015.

Feedback was given to the registered manager, the chief executive and two nurses on the 26 January 2015. The provider was given 48 hours notice of the inspection. Because the service provides support to families in their own homes we needed to be sure that someone would be available to meet with us in their office.

The inspector was accompanied by a specialist advisor who had knowledge and experience of children and young people’s hospice care.

Before the inspection we reviewed the information we held about the service. This included notifications, which are information about important events which the service is required to send us by law. We also looked at previous inspection reports.

During our inspection we observed how the staff interacted with the children, young people and their families. We looked at the care records for five children and young people who were using the service, staff training records, two staff recruitment files and other records about how the service was managed.

We spoke with six relatives of three children in person and made contact with a further four families by telephone. We also spoke with the registered manager, the chief executive, six nurses and three administrative staff.

Updated 18 March 2015

The Jessie May Trust is a registered charity which offers respite and support to parents and nursing and personal care to children with life limiting illnesses in their own homes. They provide respite care visits for children and young people aged 0 to 19 years of age. Qualified nurses specialising in children’s health care or nursery nurses provide the care and support due to the complexities of the children’s health care needs.

We last inspected the service in November 2013 and no concerns were found.

There was a registered manager in post. A registered manager is a person who has registered with the Care Quality Commission to manage the service. Like registered providers, they are ‘registered persons’. Registered persons have legal responsibility for meeting the requirements in the Health and Social Care Act 2008 and associated Regulations about how the service is run.

Parents told us they were very happy with the care and trusted the nurses to support their child safely. Comments included “it is an amazing service we receive, all the nurses are exceptional and we trust them with our child” and “I cannot fault the service, the staff are friendly and my child enjoys the visits from Jessie May Trust” and “they spend time with my child playing and interacting which is positive as usually the focus is health appointments, it is a fantastic service”.

At the time of our inspection there were 83 children registered with The Jessie May Trust. Support varied depending on the assessment of the child and the requirements of the family. Each child had been assessed and a care plan drawn up involving the child, the parents and other professionals. Parents had been involved in a self-assessment of their needs which provided a score on the frequency of visits and support. Parents confirmed this was kept under review as the needs of their child changed. Care plans included both short and long term goals and wishes on the event of an admission to hospital and end of life care. Parents described to us how this was done sensitively taking into consideration the needs of the child and their wishes.

Clear records were kept of the visits and support delivered to each child. Parents and the nurses shared important information about how to keep the child safe and what was required on each visit. This included any medicines that may be required. The staff had received training in the safe administration of medicines. This included training on oxygen therapy.

Staff understood the needs of the children and young people they supported. They had received appropriate training to enable them to support the children in their care. Staff were aware of the importance of safeguarding children and their role in sharing information with other professionals. Suitable arrangements were in place to ensure only suitable staff were employed to work for The Jessie May Trust. The nurses were employed through the United Bristol Hospital Trust which provided additional support to the nurses in respect of clinical training and support.

There were systems to regularly review and monitor the quality of care. Feedback was gained from children, young people and their families at regular intervals to drive improvements. Parents were invited to attend regular meetings about the running of the service with some being a parent representative on the board.

Staff from the Jessie May Trust work with other professionals and participate in local networking groups to ensure they were working in partnership and following current good practice guidelines.