Conclusion

Page last updated: 23 March 2022
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As can be seen throughout this report there is still much to be done to ensure that people with mental ill health, those with a learning disability and autistic people, get the right support at the right time.

Most of the recommendations we made in our Out of sight report in 2020 are not sufficiently progressed to have the impact that is needed.

Throughout this report we have tried to reflect on what we are seeing and hearing from people and providers, as well as relevant data. We know that there are still too many people in hospital unnecessarily, that too many people are subject to restrictive interventions, and that not enough people are able to access the support they need in the community.

This must change. Fundamental to that change is a change in approach and expectations. Working in real partnership with people with lived experience and their families must be the foundation on which this change is based. Changes must be co-produced at system level, provider level and at an individual level. Families’ views should not only be listened to, but acted on, so that people can have the right care and support that they need and want, to be able to lead their best lives.

This may not be easy. It requires policymakers, planners, regulators, commissioners and professionals to recognise the expertise of people and their families – those who have the ambition and understanding of what matters in each person's life. It requires a change in our perception from a focus on services to a person’s needs, and a change in the view of a patient or a person who uses health and social care services to a citizen, with equal worth.

Those changing views and perceptions then need to be supported by systems that make it easy for the funding and delivery of support to follow the person throughout their lives. Moving from health to social care, childhood to adulthood, education to social care, and mental health to learning disability services should not be a barrier or a battle, but a recognition of the changes in people's lives that they may need different support for.

Progress needs to be made and the governance for this must lie with the Department of Health and Social Care Building the Right Support delivery board to hold members to account and deliver the recommendations. We invite the Department of Health and Social Care and partners to clarify how the recommendations relating to services for people with mental ill health will be progressed.


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