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Declare Your Care: People with learning disabilities

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Declareyourcare LD image young man at a day centre with a carer

Declare Your Care is a year-long, campaign focusing on four key population groups which we know have lower awareness of CQC.

Key findings for people with a learning disability their family, carers and advocates

Our research reveals that people with a learning disability are more likely to regret not complaining about poor care than those without. The main reasons they or their carers to want to raise a concern are:

  • lack of information about a health condition
  • treatment options are not well explained.

Our research looked at people with learning disabilities in England who have had experience of health or social care in the last 5 years. We included both patients and carers.

  • Half of adults said that they have wanted to raise a complaint about the lack of information about their care or treatment.
  • They are 17% more likely to regret not complaining about poor care than people without learning disabilities.
  • They are twice as likely to have concerns about maternity services and mental health services than people without learning disabilities.

Stories

Photo of Emile

Emile's story

Photo of Jacob

Jacob's story

Photo of Sebastian

Sebastian's story

Photo of Sarah

Sarah's story

Photo of Stephanie

Stephanie's story

Photo of Jide

Jide's story

Ask Listen Do

NHS England's project Ask Listen Do looks at the experiences of people with a learning disability, autism or both, their families and carers. Nearly1,300 people replied to their survey about giving feedback, raising concerns and making complaints.

What to do about poor care

Last updated:
16 January 2020

 


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